This fundraiser is for one of our favorite little guys, Ambrose. A Superhero like him deserves a proper shirt.
Ambrose is currently battling Charge Syndrome.
CHARGE syndrome is a rare genetic disorder characterized by a combination of birth defects. The acronym stands for:Â
-
- C:Â oloboma (eye defects)
- H:Â eart defects
- A:Â tresia of the choanae (blocked nasal passages)
- R:Â etinal detachment or other eye defects
- G:Â enital and urinary tract abnormalities
- E:Â ar malformations and hearing loss
In Ambrose case, his parents are making routine trips downstate to the University of Michigan’s MOTTS Children’s Hospital. Their dedication to Ambrose is nothing short of amazing. But, with that comes the expenses of missing work (for both parents) and the travel and lodging costs associated with their stay. This fundraiser is meant to help offset their out of pocket costs while Ambrose continues to receive treatment.